PEDiDBS

PEDiDBSPEDiDBSPEDiDBS

PEDiDBS

PEDiDBSPEDiDBSPEDiDBS
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Pediatric International DBS Registry Project

Pediatric International DBS Registry ProjectPediatric International DBS Registry ProjectPediatric International DBS Registry Project
Contact Us

Pediatric International DBS Registry Project

Pediatric International DBS Registry ProjectPediatric International DBS Registry ProjectPediatric International DBS Registry Project
Contact Us

Executive Committee:
Anne Koy, MD; Michael C. Kruer;  MD; Jean-Pierre Lin, MD; Warren Marks, MD;
Terry Sanger, MD, PhD; Lars Timmerman, MD

What is the PEDiDBS Registry?

 The PEDiDBS is a registry of prospectively and retrospectively-collected  data intended to foster collaborative research on topics related to the  use and outcomes of deep brain simulation (DBS) in the pediatric  population. 

Why do we need it?

 DBS was introduced late 1990s for Parkinson’s disease and essential  tremor. In 2003, DBS therapy received initial approval in Europe and  Humanitarian Device Exemption (HDE) approval in the U.S. for managing  the symptoms of dystonia. Today less  than 1000 pediatric patients have been implanted.  As even the most  experienced centers have only around 100 patients, there is an  international consensus that organized data sharing is important to  appropriately develop and understand the role for this technology in  pediatrics. Collaborative efforts have been made to develop an  international registry for the last several years aiming to build a  collaborative network in order to share information on this highly  complex, low-volume procedure. 

How do I get started?

 Please contact us for  more information or a user name and password to the Participating Sites  Page. There you will find all of the information that you need to get  started.

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